EPISODE 25
It’s Joe’s Stroke-iversary
Episode Notes
Summary
It’s a special 25th episode of The NeuroNerds celebrating our host, Joe’s 2-year Stroke-iversary! It’s a celebration because since suffering a major hemorrhagic stroke on August 4, 2016, Joe has gained a new lease on life and made it his mission to live his Best Life. With his partner, girlfriend and caregiver Felice guest co-hosting this episode, they both go down memory lane and reflect on Joe’s stroke recovery journey offering tips, advice and lessons they’ve learned along the way.
Topics Discussed in this Episode
- It’s Joe’s stroke-iversary episode with special guest co-host Felice LaZae.
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Joe and Felice reflect on Joe’s stroke recovery journey for the past two years.
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Joe’s timeline and milestones during recovery.
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Discuss the importance of patience during recovery
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The importance of talking to your doctor about handicap placards if you’re suffering physical deficits from brain injury
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Finding the positive aspects of going through a brain injury experience. Joe got a new lease on life for instance.
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The important role of Joe’s occupational therapist, Kaley Meister, in his continuing recovery.
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Joe is working on managing his schedule with his occupational therapist
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Discussed the importance of routine during recovery and how meditation helps Joe create routine.
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The importance and role of Joe’s service dog in his continued recovery. Discusses the difference between a service animal and emotional support animal
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Find your tribe/community to support you through your recovery
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How video games serve as occupational therapy for Joe.
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Joe talks about his struggle with post stroke fatigue
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Joe had to learn how to accept help. He was always the strong one and he had to learn how to lean on others for support.
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Keep up with your healthcare during recovery. If you aren’t feeling well, see a doctor!
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How to know when it’s time to go to the ER when you have a history of stroke or brain injury.
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Joe talks about how a CT scan with contrast makes you feel like you pissed yourself.
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Caregivers and supporters of brain injury survivors can sympathize, but don’t say that you’ve gone through the same thing. That’s frustrated for survivors.
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Take preventative measures to avoid a stroke by seeing your doctor regularly.
Transcript
Links Mentioned
Kaley Meister’s latest blog article on Kaley’s Korner
Links about psychiatric service animal – https://www.ada.gov/regs2010/service_animal_qa.html, https://www.amazon.com/Training-Your-Own-Service-Dog-ebook/dp/B015SJ32AM, https://www.amazon.com/Training-Your-Own-Service-Book-ebook/dp/B015RV08J4
Fellow stroke survivor Rianne on Instagram and Twitch
CT Scan with and without contrast
Co-hosted
Editor
Marcellus Wesley
About the Guest
Octavia’s life changed dramatically when she found out she had a rare congenital brain disease, characterized by a cerebral arteriovenous malformation. This went unknown until it hemorrhaged in 2012. Luckily, she survived to tell her story. Octavia currently lives and works in Chicago and is active in the survivor community. She created the blog – nomadicaffeine.com – to highlight “life after” for young survivors.
💡Fun Fact:
For a long time, I wouldn’t drive with my right shoe on.
🤓Nerdom:
Books & Music!
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